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Clinical guidelines developed by the EHDN Working Groups. The EHDN has supported the development of physiotherapy guidelines from 2009 and the latest physiotherapy practice guidelines were published in January 2020. The two key documents related to physiotherapy practice are the 2013 Physiotherapy Clinical Guidelines, and the clinical …
Working Group Purpose. One of EHDN’s strategies is to promote research because research can deliver novel HD treatments and tools to measure their effects. Based on the 2017 Scientific Strategic Plan the EHDN Science Think Tank intends to complement and facilitate EHDN research initiatives such as the Working Groups or task forces in three …
EHDN Physiotherapy Working Group. The physiotherapy working group brings together a diverse international community of predominantly physiotherapists who work collaboratively with the aim of improving the quality of life of people with Huntington’s disease. The work of the group is wide ranging with a particular focus upon encouraging engagement in physical activity.
The EHDN advances research by providing access to large longitudinal clinical datasets and biosamples from the Enroll-HD and Registry studies as well as through the working groups, fellowship exchange programmes, seed funds, grant manager support, scientific input and operational support for clinical trials, development of clinical assessment tools and guidelines for best practice in HD care, and …
28/02/2012 · The Standards of Care Working Group is one of a number of working groups that have been formed to encourage new collaborative work in the care of HD with the aim of developing evidence based guidelines for best practice. This working group comprises over one hundred clinicians and allied health professionals from various disciplines, such as dietitians, dentists and speech and language therapists …
muscle groups which can be maintained continuously and is rhythmic and aerobic in nature (e.g., walking, jogging, swimming, and biking). resistance exercises: Frequency and duration: 8–12 repetitions per exercise; one set of 8–10 exercises that conditions large muscle groups 2–3-times a week; Intensity: 65–70% of 1 rep max
28/02/2012 · EHDN standard of care in clinical management of HD published. The European Huntington’s Disease Networks (EHDN) Standards of Care Working Group are delighted to announce the publication of a special edition issue of the Journal of Neurodegenerative Disease Management focusing on Standards of Care for the clinical management of HD.
Due to the paucity of scientific evidence, recommendations were also formulated based on expert consensus from the EHDN Physiotherapy Working Group (PWG). Following completion of the initial draft document, the guidance document was disseminated to all members of the PWG and other interested healthcare professionals. Amendments were made to the
04/02/2020 · In 2009, the Physiotherapy Working Group of the European Huntington Disease Network (EHDN) developed an evidence-based Clinical Guidance Document to inform optimal physical therapy management of people with HD and facilitate uniformity of care internationally. 3 Given the limited evidence at the time, this document was largely based on expert …
Working groups will likely have a defined scope (that may be refined, limited, or extended over their lifetime) and clear intended outputs (e.g., the code of conduct working group aims to produce a draft of core values and code of conduct as well as guidelines for enforcement).